‘Blood Cancer Awareness Month’ Recognized
0Exciting news from The Leukemia & Lymphoma Society and blood cancer awareness!
Not only is September ‘Childhood Cancer Awareness’ month, it is now recognized as ‘Blood Cancer Awareness Month’. Read on…
Washington, DC (September 23, 2010) – The U.S. House of Representatives today passed House Resolution 1433, declaring September 2010 as ‘Blood Cancer Awareness Month.’ The resolution helps raise awareness and support for issues affecting blood cancer patients within the halls of the Capitol.
“Awareness Month is an opportunity to increase the public’s understanding of blood cancers and encourage people to support the funding of research to find cures and education programs to help patients have the best possible outcomes throughout their cancer experience,” explained John Walter, president and CEO of The Leukemia & Lymphoma Society. “The Leukemia & Lymphoma Society would like to thank Representatives Walter Jones and Betsey Markey for introducing and supporting this resolution, and all of our volunteers who called and emailed their representatives to urge their support.”
Remarkable progress has been made in treating patients with blood cancers. Sixty years ago there were few effective treatments for children or adults with blood cancer and the rate of survival was very low. Today, about 75 percent of children with acute leukemia and nearly 80 percent of children and adults with Hodgkin lymphoma are cured. Advances in the treatment of blood cancers have also led to new treatments for other cancers. In fact, in the last decade, 47 percent of new cancer therapies approved by the Food and Drug Administration (FDA) were first developed and approved to treat a blood cancer.
Despite these advances, more than 900,000 people in the United States currently have some form of blood cancer and fewer than 50 percent of newly diagnosed patients will survive five years past that diagnosis. Every ten minutes someone dies from a blood cancer and more than 53,000 will die from one this year.
“Congress has been supportive of issues affecting blood cancers in the past,” said Walter, “and we thank them for that support. But more needs to be done to fight these deadly diseases – increased research funding, access to affordable treatments, and improved care planning for survivors, just to name a few issues that need to be addressed.”
About The Leukemia & Lymphoma Society
The Leukemia & Lymphoma Society ® (LLS) is the world’s largest voluntary health agency dedicated to blood cancer. The LLS mission: Cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families. LLS funds lifesaving blood cancer research around the world and provides free information and support services.Founded in 1949 and headquartered in White Plains, NY, LLS has chapters throughout the United States and Canada. To learn more, visit www.LLS.org or contact the Information Resource Center at (800) 955-4572, Monday through Friday, 9 a.m. to 6 p.m. ET.
From: www.lls.org
September 13
0In loving memory of Allison Leigh Scott – the blue-eyed princess who brought us all together. Never forgotten.
2010 Welcome!
0Hello? Hello? Does anyone else hear the echo? I know there’s probably been some doubt about this year, but we are here! Are you???
Not uncommonly, FOH has become quieter and smaller over the years. However, I, personally, would like to see it continue in whatever capacity it can. I promise to update the blog on our website more regularly! And keep the communication lines open. In exchange, will you email me at carole@friendsofheroes.org and let me know whether you are walking this year and, if you are, where and when?
Also, don’t forget to let your local office know you are joing FOH so that we receive credit for your participation! If you need help with this, let me know. I have connections, lol!
That’s it for my first blog of 2010! Walks are starting! Let’s see what FOH can do this year! I look forward to hearing from you all soon!
Update 9/25/09
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Hello Team Captains!
First, let me apologize for no update last week – “back-to-school” is kicking me in the behind
Second, WOW!!!! I received a report on Sunday the 20th and then again this morning and the increase in walkers and money is incredible! YAHOO! We are up to $12,000, 234 walkers and 23 team captains! And the season has really just begun!!!!
Lastly, let’s cheer on this week’s walkers!
Go Team Friends of Heroes and Affiliates!!!!!! Hope you all have terific walks! Please send pictures my way if you have any! I’d love to update the website!
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LTN Walks Begin – Cheer on our walkers!
0Get your megaphones and pompoms out! Friends of Heroes teams are walking this weekend! Let’s cheer them on!
Thurs. 9/10 – Beth Ann – Hoover, AL
Fri. 9/11 – Kathie – St. Peters, MO
Sat. 9/12 – Beck – Sparks, NV
Please send pictures or a report after your walk so we can celebrate with you! I’ll put them on the FOH website too!
Thanks for all you do! Have a great walk night!
Make a Difference this September
0September is Childhood Cancer Awareness Month and Leukemia, Lymphoma and Myeloma Awareness Month. Both awareness initiatives are near and dear to the heart of Friends of Heroes.
An estimated 10,730 children under the age of 15 were diagnosed with cancer in the United States in 2008, with leukemia being the most commonly diagnosed childhood cancer at 32.6 percent of all cases. Lymphoma ranked as the third most diagnosed pediatric cancer in 2008.
Our group began with a passion to put an end to childhood cancer and we annually participate in the Leukemia & Lymphoma Society’s Light The Night Walk to raise money and awareness for a cure. There are simple ways we can each make a difference by supporting research, raising awareness and contacting legislators.
Did you know:
- Every five minutes, someone in this country is diagnosed with blood cancer?
- Every nine minutes, someone loses the fight?
- Leukemia is the leading cause of disease-related death among children under age 15?
- Approximately 3,000 children die from a blood cancer every year?
Help us make a difference for these families!!!
Donate by visiting one of our team member pages at:
http://pages.lightthenight.org/2009/friendsofheroes
The Leukemia & Lymphoma Society (LLS) funds lifesaving research that has contributed to major advances in the treatment of blood cancers and treatments for other types of cancer, such as chemotherapy and stem cell transplants. These treatments have helped patients live better, longer lives. New targeted therapies that kill cancer cells without harming normal tissue are providing drugs and procedures that are improving quality of life.
- A donation of $25 provides patients and their loved ones with FREE booklets that contain up-to-date information on their disease and help them make informed decisions about their treatment options.
- A donation of $50 makes possible a Family Support group with a trained facilitator where comfort can be found and experiences can be shared among patients and family members.
- A donation of $100 helps supply laboratory researchers with supplies and materials critical to carrying out their search for cures.
- A donation of $1,000 makes possible one- on-one conversations with health care specialists who provide patients with information about their disease, treatment options, and helps prepare them with questions for their health care team.
Make a difference that will make a big impact!
Participate in a Light The Night Walk near you:
http://pages.lightthenight.org/2009/friendsofheroes
Join our Light The Night Team – Friends of Heroes and raise awareness among your family, friends and co-workers. Light The Night Walk is the nation’s night to pay tribute and bring hope to thousands of people battling blood cancers and to commemorate loved ones lost.
Funds raised by walkers provide:
- Lifesaving blood cancer research
- Financial assistance to cover patient expenses for transportation, medication and testing
- Free educational materials and events for patients and their families
- Local programs such as Family Support Groups and First Connection, a peer-to-peer counseling program
- Comprehensive, personalized assistance through our Information Resource Center
Light The Night Walk events are evenings filled with inspiration. Carrying illuminated balloons – white for survivors, red for supporters and gold in memory of loved ones lost to cancer – thousands of walkers – men, women and children – form a community of caring, bringing light to the dark world of cancer.
If you already have a Light The Night Team, join us as an affiliate team. Contact Carole at affiliates@friendsofheroes.org for more information.
Make a difference on Capital Hill
Urge Your Representative to Co-Sponsor Pediatric Cancer Survivorship Legislation
Improvements in long-term survival rates for pediatric cancer patients present some new challenges for patients, family members, providers and policy makers. Patients may face greater risk of secondary cancers; they may have limited access to follow-up care; the follow-up care they do receive may be inadequate; and some may face cognitive or psychosocial problems. Expensive long-term treatments, hurdles to purchasing health, life, or disability insurance, and employment barriers also pose difficulties for cancer survivors.
Reps. Jackie Speier (D-CA) and Mary Bono Mack (R-CA) recently introduced the Pediatric, Adolescent, and Young Adult Cancer Survivorship Research and Quality of Life Act (H.R. 2109). This legislation would provide much needed resources to fund research and survivorship programs that would dramatically improve the quality of life for all cancer survivors.
Please take a moment to send a letter to your representative urging them to co-sponsor this important legislation. Please make sure that pediatric cancer survivors receive the care they need as they move on with their lives.
Source: LLS.org







