Announcements/News
Did you know?
03 years ago
by BeckM
in Announcements/News
Friends of Heroes has a forum to keep in touch with the national team? Please join us at http://friendsofheroes.proboards80.com/index.cgi
This is a great way to find out what other teams are doing, to keep up and offer support to cancer patients and just chit chat.
In search of some HEROES
03 years ago
by BeckM
in Announcements/News
Through out the years our team has had the chance to meet and support many children who have been battling a war against cancer. This war takes place in their tiny bodies. The word cancer is enough to scare anyone, and to say it to a child must be devastating, yet these children take it with their heads held high. These children are true heroes. They each deserve the honor of being named a hero.
This year, Friends of Heroes wants to honor these warriors who have battled more in their lives then most adults will ever endure. To nominate a child to be one of Friends of Heroes, Hero of the month, please send in their Name, Age, Parent/guardian’s e-mail, a quick story on this child and how they have touched your life to teamleaders@friendsofheroes.org
Please note that we can only accept nomiations that have the consent from the child’s parent or guardian.
TAP Advancing Clinical Trials
04 years ago
by Jenn
in Announcements/News
The LLS Therapy Acceleration Program’s Academic Concierge Division continues to successfully leverage LLS research investments by helping select LLS-funded academic investigators move new therapies toward market approval. On April 22, 2009, LLS will present one of its Academic Concierge projects, headed by Principal Investigator Aaron D. Schimmer, F.R.C.P.C., M.D., Ph.D., Ontario Cancer Institute (shown here), at a meeting with Health Canada (the Canadian equivalent of the U.S. Food and Drug Administration) and discuss next steps toward opening a Phase I clinical trial. Barring any concerns from Health Canada, the program is on track to open LLS’s first AC Division clinical trial in the fall of 2009.
In conjunction with the LLS National Board of Directors meeting held March 13th in Newark, N.J., the Therapy Acceleration Program Governance Committee reviewed the progress of the Cleveland Clinic partnership in the Clinical Trials Program Division and approved a third LLS-supported trial to open at the Clinical Trial Center for Hematologic Malignancies. This Phase I/II trial will combine two approved therapies, Lenalidomide and Rituximab, for maintenance therapy following high-dose chemotherapy and autologous stem cell transplantation in patients with B-cell non-Hodgkin’s lymphoma.
Also exciting is news that the Cleveland Clinic will utilize three of its community treatment centers when it becomes a trial site for LLS’s partner, Aegera Therapeutics, and the ongoing Phase I/II trial of a new drug (AEG35156). The Cleveland Clinic’s main campus and three regional hospital centers will begin recruiting patients with relapsed or refractory chronic lymphocytic leukemia (CLL), small lymphocytic lymphoma or follicular lymphoma for treatment with Aegera’s AEG35156, that inhibits a molecule called X-Linked Inhibitor of Apoptosis (XIAP). This is a significant step toward LLS’s goal of enhancing access to clinical trials by “taking the trial to the patient.”
In order to leverage its successful clinical trial partnership with the Cleveland Clinic and to further address issues that currently limit clinical trial participation, LLS hosted a 1 1/2 day workshop this past February in San Francisco. Ron Levy, M.D., professor and chief, Division of Oncology at Stanford University, led discussions in which clinical trials experts reviewed ongoing models for early phase blood cancer treatment trials, including roles for-profit companies and government agencies can play, and considered how LLS can best use its resources to help increase participation in practice-changing trials. Workshop discussions provided many insights that will enable future partnerships for the LLS Clinical Trials Program.
Source: LLS.org (eNewsline)
Gap inc Give & Get for the Leukemia and Lymphoma society!
04 years ago
by BeckM
in Announcements/News
Save money with Gap Inc’s nationwide Give & Get coupon which will support The Leukemia & Lymphoma Society (LLS).
This Thursday March 12 -Sunday March 15 – Gap Inc‘s 30% discount coupons will also provide a 5% donation (of LLS coupon-holders’ net purchases) to LLS.
Send this today, to all your friends and families. Forward this email or copy this URL and pass it on. http://www.gapgiveandget.com/np/lls.html
Gap Inc stores include: Gap, Banana Republic and Old Navy. The coupons are for in-store purchases only and they are good in both the USA and Canada.
Simply go to the Give & Get coupon page, print a coupon and go shopping. You can print as many as you need, to shop at different Gap Inc stores.
Looking for some team leaders
04 years ago
by BeckM
in Announcements/News
Have you always wanted to help out behind the scenes of Friends of Heroes? Do you think that you can contribute to our 2009 Friends of Heroes team? If so, we are looking for you! We are looking for members who are willing to help us with out 2009 planning efforts. Please send us a letter of interest to teamleaders@friendsofheroes.org
Please include the areas that you feel you are strongest at, such as social relations (myspace, facebook, twitter, etc), technical, fundraising, organizational, or just about anything you feel will help out our team as a whole.
Meet our 2009 Friends of Heroes Co-Captians
04 years ago
by BeckM
in Announcements/News
We are very excited to announce the 2009 Friends of Heroes team co-captains: Carole Franklyn and Beck Marko!
“Both Carole and Beck have been extremely helpful and supportive over the years. I am confident the team will advance under their leadership!” said Jennifer Burgess, National Co-captain 2007 & 2008
Please join us in welcoming Carole and Beck! They are both so honored to help lead such an amazing team.
Meet Carole Franklyn
“I am a married mom of two: Makenna is 8 and Aidan is 4. I live in Virginia , about 20 miles outside of Washington , DC . I work fulltime as an HR Specialist and Executive Assistant for a healthcare management company. Besides FOH, I love to read, be with my kids and volunteer at their schools. I am also active with CancerWarriors and been a proud sponsor of three kids: Amazing Jacob (an angel in Heaven), McKayla (OT 2+ yrs) and Princess Chloe (OT 6 months) who I got to meet in person! Last year, I was on my local LTN committee, but decided that this year I would devote my time to FOH.
“My son was born in June 2004 and while I was home on maternity leave, I discovered BabyCenter and through that, Allie’s story. I have been a member of Friends of Heroes since before it was Allie’s Angels. That little girl, and the many other children since her, have touched me in a way I never could have predicted – maybe because I had young children or maybe because I was looking for something “more” in my life. Whatever the reason, FOH has found a place in my heart.
“Over the past three years, I have become more and more involved in FOH. I started out on the Task Force and have moved up to my current position. I am looking forward to many great things from FOH this year! Most importantly, I’d like to spread the word about us as well as increase the involvement from all of you. It takes all of us to make FOH a success!”
Now meet Beck Marko
“I am Beck, a stay at home mom of three kiddos ages five, four and three years old, and I have been happily married for 7 1/2 years to my husband Vince. Leukemia and Lymphoma Society has been a huge part of my life since I first read about baby Allie on her family’s web page. I chose from that day forward that I would make it my job to do as much as I can to help find the cure for cancer.
“Since then I have served on several committees including 2004-2008 Northern Nevada Man Women and Celebrity of the year events, I chaired the 2007 Northern Nevada Light the Night walk, I have also served three years on the Friends of Heroes planning team. In 2007 I was a task force teammate, 2008 I was in charge of social networks and then I was honored with the chance to work along side Carole as a co-captain to such a wonderful team in 2009.
“I have had the wonderful opportunity to meet so many wonderful people and can’t wait to make 2009 a WONDERFUL year!!!!! Outside of Friends of Heroes, I love to make homemade soaps, crafts, teaching Sunday school at our church and just being a mama.”
More About National Co-captains
After the unprecedented fundraising success and teamwork of Friends of Heroes (then Allie’s Angels ’04 and Friends of Allie ’05), a succession plan was created to ensure the future of Friends of Heroes. This plan provided for two national co-captains and a team leader committee.
Friends of Heroes National Co-Captains are passionate about the LLS mission and devote much of their spare time to help the team. As a co-captain, they serve a two-year term and draw from their previous experience as national team leaders. Typically, the co-captain terms are staggered to provide continuity and to enable them to share and pass on their experience. Since a new co-captain was not installed in 2008, two new co-captains will lead Friends of Heroes in 2009.
