Awareness Events

September is Childhood Cancer Awareness Month and Leukemia, Lymphoma and Myeloma Awareness Month. Both awareness initiatives are near and dear to the heart of Friends of Heroes.

An estimated 10,730 children under the age of 15 were diagnosed with cancer in the United States in 2008, with leukemia being the most commonly diagnosed childhood cancer at 32.6 percent of all cases. Lymphoma ranked as the third most diagnosed pediatric cancer in 2008.

Our group began with a passion to put an end to childhood cancer and we annually participate in the Leukemia & Lymphoma Society’s Light The Night Walk to raise money and awareness for a cure. There are simple ways we can each make a difference by supporting research, raising awareness and contacting legislators.

Did you know:

• Every five minutes, someone in this country is diagnosed with blood cancer?
• Every nine minutes, someone loses the fight?
• Leukemia is the leading cause of disease-related death among children under age 15?
• Approximately 3,000 children die from a blood cancer every year?

Help us make a difference for these families!!!

Donate by visiting one of our team member pages at:
http://pages.lightthenight.org/2009/friendsofheroes

The Leukemia & Lymphoma Society (LLS) funds lifesaving research that has contributed to major advances in the treatment of blood cancers and treatments for other types of cancer, such as chemotherapy and stem cell transplants. These treatments have helped patients live better, longer lives. New targeted therapies that kill cancer cells without harming normal tissue are providing drugs and procedures that are improving quality of life.

• A donation of $25 provides patients and their loved ones with FREE booklets that contain up-to-date information on their disease and help them make informed decisions about their treatment options.
• A donation of $50 makes possible a Family Support group with a trained facilitator where comfort can be found and experiences can be shared among patients and family members.
• A donation of $100 helps supply laboratory researchers with supplies and materials critical to carrying out their search for cures.
• A donation of $1,000 makes possible one- on-one conversations with health care specialists who provide patients with information about their disease, treatment options, and helps prepare them with questions for their health care team.

Make a difference that will make a big impact!

Participate in a Light The Night Walk near you:
http://pages.lightthenight.org/2009/friendsofheroes

Join our Light The Night Team – Friends of Heroes and raise awareness among your family, friends and co-workers. Light The Night Walk is the nation’s night to pay tribute and bring hope to thousands of people battling blood cancers and to commemorate loved ones lost.

Funds raised by walkers provide:

• Lifesaving blood cancer research
• Financial assistance to cover patient expenses for transportation, medication and testing
• Free educational materials and events for patients and their families
• Local programs such as Family Support Groups and First Connection, a peer-to-peer counseling program
• Comprehensive, personalized assistance through our Information Resource Center

Light The Night Walk events are evenings filled with inspiration. Carrying illuminated balloons – white for survivors, red for supporters and gold in memory of loved ones lost to cancer – thousands of walkers – men, women and children – form a community of caring, bringing light to the dark world of cancer.

If you already have a Light The Night Team, join us as an affiliate team. Contact Carole at affiliates@friendsofheroes.org for more information.

Make a difference on Capital Hill

Urge Your Representative to Co-Sponsor Pediatric Cancer Survivorship Legislation

Improvements in long-term survival rates for pediatric cancer patients present some new challenges for patients, family members, providers and policy makers. Patients may face greater risk of secondary cancers; they may have limited access to follow-up care; the follow-up care they do receive may be inadequate; and some may face cognitive or psychosocial problems. Expensive long-term treatments, hurdles to purchasing health, life, or disability insurance, and employment barriers also pose difficulties for cancer survivors.

Reps. Jackie Speier (D-CA) and Mary Bono Mack (R-CA) recently introduced the Pediatric, Adolescent, and Young Adult Cancer Survivorship Research and Quality of Life Act (H.R. 2109). This legislation would provide much needed resources to fund research and survivorship programs that would dramatically improve the quality of life for all cancer survivors.

Please take a moment to send a letter to your representative urging them to co-sponsor this important legislation. Please make sure that pediatric cancer survivors receive the care they need as they move on with their lives.

Click here to take action!